The Merry Go Round

 

After another week in the hospital it still feels like we have made very little progress.  Matthew began having issues voiding last Monday with extreme pain.  Another ultrasound revealed that he was not able to completely empty his bladder.  At this point urology was brought back in to take a closer look at the past 4 weeks of abdominal pain.  A VCUG was done on Wednesday which showed no strictures thankfully.  He was prescribed Ditropan and Pyridium to help with the bladder spasms and the burning.  They have been somewhat effective but have not totally rid him of the issues.  Here we are 5 weeks into his journey with continued daily abdominal pain, and issues voiding.

 

This is all very frustrating when all you want as a parent is to have your 10 year enjoy life as just that.....a 10 year old!  I trust in the care he has received and the course of action the doctor's have taken.  I would just prefer to have a definitive answer and a game plan to correct whatever his issue is.  We will return in two weeks for additional follow up and testing.  Next up is a Flow EMG test.  Maybe answers from this.

 

It has been 5 weeks since we began the Merry Go Round effect of in and out hospitalizations again.  The three year break he had from the hospital was great but certainly not long enough.  My sweet boy has spent over half of his life under the medical microscope. 

 

He had his first full day back to school yesterday.  Very long, trying day but he pushed through with great resolve.  Tired does not even begin to describe how exhausted he was last night.  Praying for more energy for him each day.